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Bryter at NF Summit 2026: Advancing Neurofibromatosis Research through patient engagement

Written by Seb Martin | Jul 6, 2026 1:00:01 PM

Bryter is a proud sponsor and partner of the 2026 NF Summit

This July, Bryter is proud to be a sponsor and exhibitor at the Children’s Tumor Foundation (CTF) NF Summit 2026 in Denver, Colorado. As one of the largest global gatherings of people affected by neurofibromatosis (NF) and schwannomatosis, the NF Summit brings together patients, caregivers, clinicians, researchers, advocates and industry partners with a shared goal: improving outcomes for everyone impacted by these rare conditions
For Bryter, the event represents more than a sponsorship opportunity. It is a chance to strengthen relationships with the NF community, learn directly from those living with the condition, and continue our commitment to delivering research that places patient experience at the heart of healthcare decision-making.
 

Why the NF Summit matters

The NF Summit is designed to connect, educate and empower the global NF community. The conference brings together individuals and families living with NF, researchers advancing scientific understanding, clinicians delivering care, and organisations working to develop new treatments and support services

Rare diseases can often leave patients and caregivers feeling isolated. Events like the NF Summit create opportunities for shared learning, collaboration and advocacy while helping ensure that the lived experiences of patients remain central to future research and care.

As healthcare organisations increasingly recognize the value of patient centred evidence, these conversations have never been more important.

For more details on the summit visit the Children's Tumor Foundation

 

Meet Bryter at NF Summit 2026

As an exhibitor and sponsor, Bryter will be attending the conference throughout the event and looks forward to meeting patients, caregivers, advocacy groups, researchers and healthcare organisations from across the NF community.

Visitors to our stand will have the opportunity to:

  • Learn about current and upcoming NF research programmes
  • Find out how to participate in future studies
  • Discuss patient engagement best practices
  • Explore ways patient insights can strengthen healthcare decision-making
  • Meet members of the Bryter team who specialize in rare disease research

Whether you are a patient, caregiver, healthcare professional or industry partner, we would love to hear your perspective and discuss how research can continue to make a positive impact across the NF landscape.

 

The importance of patient centred research in rare diseases

Rare disease research presents unique challenges. Patient populations are often geographically dispersed, healthcare pathways can be complex, and experiences can vary significantly between individuals.

This is why qualitative and patient-centred research is so critical.

The most meaningful healthcare innovations emerge when researchers take the time to understand not only the clinical aspects of a condition, but also the emotional, social and practical realities faced by patients and caregivers.

  

Want to know more?

Learn more about how market research and insights can build a deeper understanding of the lives of patients, support in testing and development of new therapies and build effective marketing strategies in our 'ultimate guide to pharmaceutical market research and insights'  

Or download the report Principles in marketing in rare diseases

Get in touch if you would like to learn more about how research and insights can support strategic decision making and help to shape the next generation of products and propositions in the healthcare and pharma sector